Jonathan's Home

Hey Everyone! Jonathan is home from the hospital!!! They released him sort of unexpectedly last night. Sorry for not updating sooner. It's been a crazy couple of days.

His surgeon removed his splint to change it and found that his incision is infected, so we need that to heal quickly. He also gave us a fairly LONG recovery expectation of MONTHS, not weeks before Jonathan will be able to walk. We were hoping for him to be in a walking cast in 8 weeks, but were told he would be in a removable splint at that time instead and would not be able to walk on it. Thankfully our house is mostly ready for him to be in a wheelchair for the duration of that (with the exception of our one bathroom being extremely small and completely non-handicap accessible). This has been the biggest issue so far regarding the house set up. He has to get out of his wheelchair and onto crutches, bearing all of his weight on his right ankle which he is NOT SUPPOSED TO DO. (It is also damaged, has been fused in the past and is very weak).

I am giving him his infusions for factor every day and night here at home. He REALLY wanted to come home quickly - his pain level is very high, though - something we were not completely expecting. The type of medication he can take at home does not work as well, obviously so he feels EVERYTHING. He is pressing through - anyone who knows him knows he is a fighter. It's so good to be able to be close to him..... I just hate seeing him hurt.

Again, thank you all... I could not imagine trying to juggle it all alone.

PS Visitors are welcome :-)